autism, caregivers, faith, peace, Uncategorized

Melting the Iceberg of Isolation

“… I will never leave you or forsake you.”  Deuteronomy 31:8, Joshua 1:5, Hebrews 13:5, Deuteronomy 31:6

When children with disabilities become young adults with disabilities, there is a service cliff.  Families have to piece and patch together everything to keep young adults active in the community.  One of my biggest fears when Morgan left high school, was her falling off of everyone’s map, being forgotten.  Thankfully we live in an area where the disability community itself is very active.  There are always opportunities to socialize in organized activities.   You might say there’s plenty of water to bring the horse to, but my horse doesn’t always want to drink. 😉

Morgan’s autism brings with it a lot of social anxiety.  While she is very comfortable at home, where she is able to communicate her needs, hang out in her jammies and play on her iPad Way Too Much, that only adds to the iceberg of isolation.  It’s up to me to get her out the door and into social activities.  She does “want to see friends”.  She just doesn’t always know how to “be with friends”.  As much as I try to nudge her into the group, if she’s not able to relax and engage, it’s not going to happen.  This not only isolates her.  It isolates me.

2019-10-22 (2)

All caregivers deal with isolation to some extent.  It just goes with the territory.  Add to that caring for someone who, due to their disability, is unable to give you that pat on the back for giving it your all.  It can be extremely draining at times.  It can make you question if you’re doing it good enough, if it’s possible to do anything good enough.

Recently, I was speaking to another caregiver who was feeling very unappreciated, very alone in their circumstances.  The advice I heard come out of my mouth was, “Do everything you do, as unto the Lord.” Col 3:23.  Until that moment, in my own exhaustion, I realized I had forgotten my own advice.

I have to remind myself, as I keep reaching out for Morgan’s sake and mine, I also have to Keep Reaching Up, to keep from giving up.  I don’t even know how to explain it, but there is a very solid peace I find, knowing that God has promised to never leave me or forsake me. I don’t have to fear for Morgan, or myself, being forgotten. God still sees us, even when no one else is looking.

Until Next Time,

Know The Hope!

Tammy

 

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autism, faith, family, Morgan, Uncategorized

Ego Swatting

“Goodbye Skeeter!  No time for that!” – Morgan Vice

One of my favorite spots in the world is my own backyard.  Nothing fancy there.  It’s just a peaceful little space to breathe and unplug.  Recently, while enjoying some summer solitude, Morgan swatted a mosquito, and let it know just how she felt about it disturbing her peace.

Sandbox 2

EGO can be a real peace stealer.  Being Morgan’s mom, fulltime buddy and caregiver, is a labor of the heart that requires me to be vigilant to guard my thoughts.  If not, I can get the “Poor, Pitiful, Me’s”.  I can get all caught up in worrying about myself, and the things I think I might be missing out on, becoming jealous and envious of how easy someone else’s life appears to be.  I can become narrow minded and judgmental of others.  If I’m not careful, I can get so self centered, and hard hearted, that I can’t hear God’s voice above all my noise.

Morgan is counting on me.  Don’t tell her, but I’m only human.  I’m so thankful God is God, and I’m not.  I can tell when my ego needs swatting.  I know it’s time to take that noise to the backyard, and put it in its place.  Goodbye Ego!  No time for that! 😉

There’s nothing more peaceful than placing my heart back into God’s very capable hands.  According to Jeremiah 29:11, He has plans specifically designed for me, for Morgan, for each one of us; “Plans to prosper me, and not to harm me, plans to give me hope and a future.”

My Child Love God

Until Next Time,

Know The Hope!

Tammy Vice

 

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