autism, family, friends, Morgan, Uncategorized

Messy and Beautiful

“Sometimes you’ve got to embrace the unexpected.  The things we never saw coming often take us to the places we never imagined we could go.”  Kemmy Nola

Recently, we traveled to the coast for the Frank Brown Songwriters Festival. Our family and Logan Blade‘s participate in an annual autism awareness benefit there. We also enjoy getting some rare time for our families to visit with each other. While Logan is pretty laid back, always going with the flow, Morgan requires a schedule. There is a constant juggle of what’s “too much schedule” for her, and what’s not enough.  When I think of the differences between Logan and Morgan, I’m reminded of the saying, “when you’ve met one person with autism, you’ve met one person with autism.”  Truth!

Anxiety and OCD are kissing cousins to Morgan’s autism.  They are the enemies of spontaneity and joy.  They refuse to let go and trust that the day will land in a safe place without their orchestrating every moment, every breath.  I’ve watched them take my daughter down on countless occasions, robbing her of the ability to wait, to relax, to just enjoy being with friends.  Morgan knows friends are messy, and loud.  They often do the unexpected.  They are great at derailing her perfect plans.  I’m trying to help her understand friends are also Beautiful!  Even with all the chaos they create, they are really worth having around us.

We are always trying to find ways to help Morgan learn how to cope with the messy and the unexpected, so she can enjoy being with friends.  Our family is blessed to live in an area where there are several organizations providing social and recreational opportunities for young adults with disabilities.  They have regular gatherings, dinners and dances,…  Nothing makes me happier than to see Morgan bobbing up and down on the dance floor, weaving around her buddies.  She’s still in her bubble, but it’s the closest I’ve seen her get to popping it.  😉

Using the Arts and creativity has been another great way to stretch Morgan’s coping abilities.  Her “Messy Flag” is a pour painting, which required making a mess to create something beautiful.

We’ve made note cards from her painting to spread awareness of OCD, anxiety, and autism.  As we learn and grow, it’s always our hope to bring understanding and encouragement to others.  Follow us on Facebook Know the Hope to learn more about us, and how to get some of Morgan’s note cards.  We’d love to hear from you.

 

Until Next Time,

Know the Hope!

Tammy

 

 

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faith, family, Morgan, Uncategorized

A Letter to Morgan’s Maker

Dear Lord,

I say this with the deepest respect.  Well, you did it!  You put someone in my life who can absolutely bring out the worst in me and, when I choose it, the best in me.

Morgan is my joy, and she makes me nuts!  At HER worst, she reminds me of me without You, the me before I knew Your perfect love.  Her worries, anxieties, and “all about me” moments, brought on by her version of autism and OCD, break my heart for her.  In my brokenness, I now find myself more merciful to people, more forgiving of the things I don’t understand.                                                                                                                                                                                                                                                         quilt heart

Oh, and when Morgan is At Her Best;  When she knows she’s done a good job and says “I’m so proud of me!”, when her joy is bubbling over the top at the simplest things,…When she pauses to speak to You about a need, no matter where she is or what she’s doing.  THIS brings me back to that child like faith that KNOWS, no matter what life throws at me, You’ve got it.

morning-prayer

I’m just not sure I know how to say thank you for that,… for her.

Love,

Her Mom

P.S.  I appreciate Your sense of humor.  On that note, I have a few things I want to discuss with You, and her, when we finally all get to sit down together.

 

 

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Uncategorized

“Good To The Last Drop!”

OK, call me frugal. I am a squeezer of toothpaste tubes, a scraper of peanut butter jars,…I hate to waste. But I’ve noticed other family members add items to the grocery list when they are still half full. 😉

Grocery List

Sometimes we approach life that way.  We can get so busy planning tomorrows, we waste the joy of the moments and the people that are right in front of us.  In helping Morgan deal with OCD (Obsessive Compulsive Disorder), I often find myself literally doing a song and dance to pull her out of whatever she’s obsessing on and into the present.  The plus side is that it’s teaching me to be fully present, to recognize when tomorrow’s busyness and worries are trying to steal my now.

Grocery list joy

Here’s to squeezing every last drop out of the day with the ones we love.  Right here, right now, even if it takes a little fancy footwork.

Until Next Time,
Know The Hope

Tammy Vice

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Uncategorized

Waiting With Joy

“Let’s think of something to do while we’re waiting.” – Fred Rogers

Morgan is all about putting events on her calendar.  Her enthusiasm is contagious as she talks about every detail she’s looking forward to.  However, there can be a fine line between expectation and obsession.  Obsessive Compulsive Disorder (OCD) is my daughter’s ever present companion.  I have seen it steal her joy on many occasions.  Sometimes it will have her so focused on a future event that she’s unable to see the fun that’s right in front of her.

Any of us can get so caught up in tomorrow’s possibilities that we miss the sweet simple pleasures of the here and now.  In my ongoing quest to help Morgan learn how to wait with joy, I’ve been given an unexpected gift.  Whether it’s learning to draw our favorite characters, watering a flower to help it grow, testing out a new recipe, or watching a fire burn under the stars, I’ve found there are countless wonderful things to enjoy “while we’re waiting”.  Once again, I am thankful for Mr. Rogers and his words of wisdom. 😉

Drawing Fun with Morgan Drawing Fun With Morgan

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