autism, family, friends, Morgan, Uncategorized

Messy and Beautiful

“Sometimes you’ve got to embrace the unexpected.  The things we never saw coming often take us to the places we never imagined we could go.”  Kemmy Nola

Recently, we traveled to the coast for the Frank Brown Songwriters Festival. Our family and Logan Blade‘s participate in an annual autism awareness benefit there. We also enjoy getting some rare time for our families to visit with each other. While Logan is pretty laid back, always going with the flow, Morgan requires a schedule. There is a constant juggle of what’s “too much schedule” for her, and what’s not enough.  When I think of the differences between Logan and Morgan, I’m reminded of the saying, “when you’ve met one person with autism, you’ve met one person with autism.”  Truth!

Anxiety and OCD are kissing cousins to Morgan’s autism.  They are the enemies of spontaneity and joy.  They refuse to let go and trust that the day will land in a safe place without their orchestrating every moment, every breath.  I’ve watched them take my daughter down on countless occasions, robbing her of the ability to wait, to relax, to just enjoy being with friends.  Morgan knows friends are messy, and loud.  They often do the unexpected.  They are great at derailing her perfect plans.  I’m trying to help her understand friends are also Beautiful!  Even with all the chaos they create, they are really worth having around us.

We are always trying to find ways to help Morgan learn how to cope with the messy and the unexpected, so she can enjoy being with friends.  Our family is blessed to live in an area where there are several organizations providing social and recreational opportunities for young adults with disabilities.  They have regular gatherings, dinners and dances,…  Nothing makes me happier than to see Morgan bobbing up and down on the dance floor, weaving around her buddies.  She’s still in her bubble, but it’s the closest I’ve seen her get to popping it.  😉

Using the Arts and creativity has been another great way to stretch Morgan’s coping abilities.  Her “Messy Flag” is a pour painting, which required making a mess to create something beautiful.

We’ve made note cards from her painting to spread awareness of OCD, anxiety, and autism.  As we learn and grow, it’s always our hope to bring understanding and encouragement to others.  Follow us on Facebook Know the Hope to learn more about us, and how to get some of Morgan’s note cards.  We’d love to hear from you.

 

Until Next Time,

Know the Hope!

Tammy

 

 

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autism, faith, family, Morgan, Uncategorized

The Elephant in the Room

When eating an elephant, take one bite at a time.” – Creighton Abrams

Years ago, I worked as an assistant to a bookkeeper.  She was top notch. Although the top of her desk was covered with endless stacks of tasks to be addressed, she could easily reach in and find whatever was requested.  Still, I couldn’t understand why she didn’t put things that weren’t urgent in a drawer.  She said, “Out of sight, out of mind.”  Keeping it all on her desk, kept her conscious of what was next.

It was mindboggling to me how Mrs. Juanita could work on the task at hand, while so much was staring back at her.  Just seeing her desk made me hyperventilate.  Yet, each day she approached it all, calmly and systematically.  She was always pleasant, and had a great sense of humor.  I had to know her secret.  When I asked how she did it, she smiled and said “How do you eat an elephant?”  She saw my puzzled look, and answered her own question, “One bite at a time.”  My youth and impatience just couldn’t swallow it at the time, but today I’m thankful for the living example of peace she offered me.

Dumbo Rider

As the parent of a young adult with disabilities, I’m aware of “The Elephant” of needs, now and in the future, that I cannot possibly address in their entirety today.  I can’t act as if they don’t exist.  But the reality is, there is a daily limit to my mental digestion.  Knowing my appetite is better on some days than others, and Morgan is invariably going to throw in a squirrel or two, I hang on tightly to my sense of humor.  I’m learning to address each day with joy and purpose, as it comes.  I start with a prayer, a fresh breath, and accomplish what I can, when I can.

Elephant Cup

With the right perspective, even an elephant can be digested in bite sized pieces.

Until Next Time,

Know The Hope,

Tammy

 

 

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Uncategorized

Waiting With Joy

“Let’s think of something to do while we’re waiting.” – Fred Rogers

Morgan is all about putting events on her calendar.  Her enthusiasm is contagious as she talks about every detail she’s looking forward to.  However, there can be a fine line between expectation and obsession.  Obsessive Compulsive Disorder (OCD) is my daughter’s ever present companion.  I have seen it steal her joy on many occasions.  Sometimes it will have her so focused on a future event that she’s unable to see the fun that’s right in front of her.

Any of us can get so caught up in tomorrow’s possibilities that we miss the sweet simple pleasures of the here and now.  In my ongoing quest to help Morgan learn how to wait with joy, I’ve been given an unexpected gift.  Whether it’s learning to draw our favorite characters, watering a flower to help it grow, testing out a new recipe, or watching a fire burn under the stars, I’ve found there are countless wonderful things to enjoy “while we’re waiting”.  Once again, I am thankful for Mr. Rogers and his words of wisdom. 😉

Drawing Fun with Morgan Drawing Fun With Morgan

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