autism, dance, faith, family, Morgan, risks and rewards, Uncategorized

Tap Dancing on Egg Shells

“The best laid plans of mice and men often go awry.” – Robert Burns

Our family has been anticipating a trip to Disneyworld for a few years now, as a graduation gift to Morgan.  The actual planning began in February, with the help of Kingdom Concierge.  They created a time line for each stage.  There were some “must dos” on Morgan’s list, including breakfast with Cinderella, which had to be reserved six months ahead.  Fast passes to popular rides and events were chosen two months before going.  This was done to cut down on waiting times, so we could enjoy more of what the four parks have to offer.  From maps to apps, there is a lot to navigate.  Add autism to that mix, and we are talking NINJA – PLANNING.  As Morgan would say, “Too many choices!”.  But I knew the lack of stress, and extra smiles, on the vacation end would be worth it.  Mom mission accomplished. Or so I thought.

One week beforehand, Hurricane Irma entered the picture.  Flights, hotel reservations, Fast-Passes,… needed to be shifted a day, and re-booked, to be safe.  DONE.  Two days before traveling, while Disneyworld was shut down for the storm, all of our plans suddenly disappeared from the app.  I spoke to our travel agent on Monday, one day prior to departure.  We thought it was a computer glitch, but it turned out some human there had made an error, and canceled our whole vacation.   Since Disney was still closed, running on a skeleton crew, our agent would have to call, and hopefully be able to rebook our hotel package, with Morgan’s expected Nemo suite, in time for us to check in.

Meanwhile, our daughter was totally unaware of all the chaos.  All she knew was “Number 12” on her calendar said airplane to Disney.  The morning of our flight, my husband and I woke up, poured some coffee, and pulled out our morning devotional to get our breath.  We sighed, and even laughed, as we read the words pictured below.  We said our prayers, and boarded the plane, now trusting the outcome to “His hands”.  We landed, and received a text to get in touch with our agent ASAP.  She had been on the phone, holding for six hours, because they needed our approval for booking.  All that mattered to Morgan was back in place, including her requested Fantasmic Fast Pass for that evening. 🙂

Jesus Always Sept 12

We realize all of this was just a thread of inconvenience, compared to what people were going through in the storm.  Life can be an eggshell walk for all of us at times.  I plan to keep trusting and tap dancing on those egg shells, because life is about so much more than just getting by.

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Until Next time,

Know The Hope!

Tammy

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Uncategorized

Life Sighs

“Though she be but little, she be fierce!” – William Shakespeare

This September, Allison will be celebrating her 30th birthday.  I remember the day she was born, as if it was yesterday.  On the seventh floor of the Providence Hospital, we were all anxiously awaiting her arrival.  Thirteen hours of labor, posterior “face up”, her spine against mine.  A lot of pushing and pulling.  Right from the get-go, a little woman who had her own ideas. 😉

When Allison finally made her appearance at 3:07 pm, there was some discussion about her size.  They handed Rudy a paper measuring tape, and asked how long he thought she was.  (I’m sure this was a distraction tactic for nervous new dads.) He guessed 24 inches.  Papaw’s response was “That baby ain’t no two feet long!”  Rudy continued to fumble with the tape while she wiggled.  The final analysis, 21 inches long.  Weight 7 lbs. 7 oz.

couch babies  Our Lamaze class results.  Allison is the first, and smallest, munchkin on the left.

Although she’s still “five foot nothing”, Allison’s come a long way.  She’s always been one to aim at her goals, and do what it takes to accomplish them.  I’m very proud of the woman she’s become.  I’m thankful she’s been blessed to find her soulmate, a career, and a community she loves being a part of.  Below are the lyrics to a song and a link to the music, written as a gift, to celebrate her 30th.  Love you girl!

Allison
Three decades full of prayers and praise
Since a new life landed on the planet that day
Changed our world, sweet little baby girl
They handed your dad a measuring tape
Said there wasn’t much there, but every inch was great
In his eyes, No surprise
We were feeling blessed and half scared to death
Just looking at you took our breath
Allison, Allison

You were the Princess of Pine Street
At age twelve we moved to Tennessee
Changed your world, no more baby girl
It was all crazy, it was all new
You hung in there, you did what you do
The girl we know and love, rose above
You’re still five foot nothing, but you’re dynamite
A pint-sized candle, burning bright
Allison, Allison

Got a Masters, a paycheck, found your Prince
Picked a couple of pugs, and married all of them
Now they’re your world. Not bad for 30, girl.
Allison
Love, Mom – for September, 2017

OLYMPUS DIGITAL CAMERA Allison, Prince Jabe, & the pugs

Until Next Time,

Know The Hope!

Tammy

 

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autism, faith, family, Morgan, Uncategorized

Ego Swatting

“Goodbye Skeeter!  No time for that!” – Morgan Vice

One of my favorite spots in the world is my own backyard.  Nothing fancy there.  It’s just a peaceful little space to breathe and unplug.  Recently, while enjoying some summer solitude, Morgan swatted a mosquito, and let it know just how she felt about it disturbing her peace.

Sandbox 2

EGO can be a real peace stealer.  Being Morgan’s mom, fulltime buddy and caregiver, is a labor of the heart that requires me to be vigilant to guard my thoughts.  If not, I can get the “Poor, Pitiful, Me’s”.  I can get all caught up in worrying about myself, and the things I think I might be missing out on, becoming jealous and envious of how easy someone else’s life appears to be.  I can become narrow minded and judgmental of others.  If I’m not careful, I can get so self centered, and hard hearted, that I can’t hear God’s voice above all my noise.

Morgan is counting on me.  Don’t tell her, but I’m only human.  I’m so thankful God is God, and I’m not.  I can tell when my ego needs swatting.  I know it’s time to take that noise to the backyard, and put it in its place.  Goodbye Ego!  No time for that! 😉

There’s nothing more peaceful than placing my heart back into God’s very capable hands.  According to Jeremiah 29:11, He has plans specifically designed for me, for Morgan, for each one of us; “Plans to prosper me, and not to harm me, plans to give me hope and a future.”

My Child Love God

Until Next Time,

Know The Hope!

Tammy Vice

 

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autism, faith, family, leap of faith, Morgan, Uncategorized

Room To Grow

 

Morgan and I have enjoyed watching our raised bed plants grow.  Although she would like to plant “a lot a bunch” of pretty green things, we’ve learned that less is more.  With room to grow, in a mix of good and bad weather this year, our tomatoes and “summer squash” are showing us they know just what to do. 🙂  In Morgan’s words, they’re “A Beautiful Mess”.

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One of the hardest things for me, as a parent, is NOT overcrowding Morgan.  I admit, I’ve found myself blocking her sun on several occasions, when my sole intent was to shade her from harm.

This song was written about that parent struggle.  How much to hang on, when to let go, remembering that God’s hands are always there.  😉 A Real Hard Place To Fall

I have to consciously pull myself back to give Morgan the space she needs.  My prayer is for her to have room enough to be able to make her own beautiful, messy, place in God’s garden.

Until Next Time,

Know The Hope!

Tammy

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autism, faith, family, Morgan, Uncategorized

The Elephant in the Room

When eating an elephant, take one bite at a time.” – Creighton Abrams

Years ago, I worked as an assistant to a bookkeeper.  She was top notch. Although the top of her desk was covered with endless stacks of tasks to be addressed, she could easily reach in and find whatever was requested.  Still, I couldn’t understand why she didn’t put things that weren’t urgent in a drawer.  She said, “Out of sight, out of mind.”  Keeping it all on her desk, kept her conscious of what was next.

It was mindboggling to me how Mrs. Juanita could work on the task at hand, while so much was staring back at her.  Just seeing her desk made me hyperventilate.  Yet, each day she approached it all, calmly and systematically.  She was always pleasant, and had a great sense of humor.  I had to know her secret.  When I asked how she did it, she smiled and said “How do you eat an elephant?”  She saw my puzzled look, and answered her own question, “One bite at a time.”  My youth and impatience just couldn’t swallow it at the time, but today I’m thankful for the living example of peace she offered me.

Dumbo Rider

As the parent of a young adult with disabilities, I’m aware of “The Elephant” of needs, now and in the future, that I cannot possibly address in their entirety today.  I can’t act as if they don’t exist.  But the reality is, there is a daily limit to my mental digestion.  Knowing my appetite is better on some days than others, and Morgan is invariably going to throw in a squirrel or two, I hang on tightly to my sense of humor.  I’m learning to address each day with joy and purpose, as it comes.  I start with a prayer, a fresh breath, and accomplish what I can, when I can.

Elephant Cup

With the right perspective, even an elephant can be digested in bite sized pieces.

Until Next Time,

Know The Hope,

Tammy

 

 

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autism, faith, Morgan, Uncategorized

The Blue Side of the Rainbow

“April showers bring May flowers.” – Thomas Tusser

“April is Blue” – Morgan Vice

Morgan assigns each month a color.  During the month, she collects and creates things of that color.  January is white, because of snow.  February is red and pink.  March is green,…  We do an autism awareness event at the Bluebird Cafe’ each year in April, so Morgan has decided April is blue.  One day recently, she noticed there are “Lots of Blues!”  So she created this blue rainbow pictured below. 😉

Blue Rainbow Small

And look at this “Cool Bluebird Clock” we found to match her Bluebird hat. 🙂

Bluebird Clock Small

After several rainy blue April days, mom is ready for the “Rainbow Month” of May, with all it’s flowers blooming.  Whenever I’m on the blue side of the rainbow, I remind myself that everything is only for a season.  Time is always ticking, bringing a new day, and new light.

I CAN WAIT

WITH THE CLOUDS AND ALL THE THUNDER

SOMETIMES I CAN’T HELP BUT WONDER

IF THERE WILL EVER BE ANOTHER SUNNY DAY

AT THE END OF MY ROPE

HANGING ON TO WHAT’S LEFT OF HOPE

BUT THE WEATHER’S ALWAYS CHANGIN’

I CAN WAIT

 

WHEN I’M ON THE BLUE SIDE OF THE RAINBOW

IT CAN BE SO HARD TO SEE THE LIGHT

BUT SOMEWHERE I KNOW THE SUN IS SHININ’

AND ALL THE OTHER COLORS ARE IN SIGHT

 

 SOMETIMES CALENDERS AND CLOCKS

TEND TO BE MY STUMBLIN’ BLOCKS

ONCE AGAIN I COME UP SHORT AND ONE DAY LATE

THEN A SECOND HAND GOES WHIRLIN’ BY

BRINGS A HINT OF GOLDEN SKY

SO TIME IS NOT MY ENEMY

I CAN WAIT

WHEN I’M ON THE BLUE SIDE OF THE RAINBOW

IT CAN BE SO HARD TO SEE THE LIGHT

BUT SOMEWHERE I KNOW THE SUN IS SHININ’

AND ALL THE OTHER COLORS ARE IN SIGHT

I CAN WAIT

by: John Edd Thompson & Tammy Vice (c) 2002 BMI

Available on iTunes

Until Next Time,

Know The Hope,

Tammy Vice

 

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autism, faith, family, Morgan, Uncategorized

Chains and Rainbows

For now we see through a glass, darkly; but then face to face: now I know in part; but then shall I know even as also I am known.” 1 Corinthians 13:12

Each year, our family holds an autism benefit for Autism Tennessee at the Bluebird Café.  This April will be our sixteenth year.  The event was named “Breaking The Chains”, after a song that was written for our daughter, during a time I had so many questions about her and her future.

You know that old saying, “Be careful what you pray for.”  I remember a time when Morgan seemed to have no interests in anything we presented, and we had tried everything.  She was diagnosed with autism when she was 3 1/2 years old.  Below are the lyrics to the song, a prayer, to be able to connect with her.  One of the lines is “open your eyes to the colors of rainbows”.

Help Me Break Those Chains

 How can I reach you so that I can teach you

Open up the world and put it in your hands

Cast out those shadows, replace them with meadows

How can I help you finally understand

There is a place out, I need to show you, please don’t hide

 

Help me break those chains that hold your precious mind

Like Rapunzel in her castle, please let down your golden hair

I need to climb and join you so that I can find

That something that’s missing between here and there

Help me break those chains

 

Open your eyes to the colors of rainbows

Open up your ears to hear the whippoorwills

Come out of that midnight, reach into the sunlight

Feel the warmth that greets you as your climb those hills

Taste the sweetness of each day, together we will find a way

 

Help me break those chains that hold your precious mind

Like Rapunzel in her castle, please let down your golden hair

I need to climb and join you so that I can find

That something that’s missing between here and there

Help me break those chains

Tammy Vice J Rees Music BMI (c)

Now Morgan is 23.  Education through the Arts has played a major role in opening the doors of communication.  I call her my event planner.  She is always about the Next Big Thing, and our house looks a lot like an art gallery.  She assigns each month a color and theme.  March was green, and “rainbow kites”.  We paint a scene on our sliding glass door to ring in the new month.

The rainbow is a promise.  There are still countless things I don’t know, so I’m thankful I do know  The Rainbow Maker.  🙂

Until Next Time,

Know the Hope!

Tammy

 

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